Saturday, December 15, 2012

A Christmas Miracle

Last week was a little rough for us.  Gavin isn't gaining weight as the doctors would like, so we are focusing on pushing calories and more feedings this week, in an effort to put some baby fat on him.  If this doesn't work, then the next step will be to put him back on the NG tube, and if that doesn't work, then we're back to talking about a surgical feeding tube.  We are also in semi-isolation now as we await for a shot that Gavin needs for his heart to prevent him from getting sick.  It really does feel like one step forward and two steps back.

But I started this blog after receiving much encouragement and advice from other parents who have kids with DS.  They told me that it really helps when times get tough or frustrating, to look back on your journey and realize how far your child and your family have truly come. 

It is easy to get caught up in the obstacles, and forget how far we HAVE already come.  Here are some pictures (finally!)for those of you who haven't been following through facebook.  Thank you all again for your many prayers, and for your part in giving us our Christmas miracle.



  1. LOVE it!! He's such a fighter and has such beautiful eyes! They're so bright!!

  2. Awe..he is boyfriends brother has Ds..all I can say is...congratulations..if only the world could see everything though a ds eyes..we wouldn't have wars or prejudice..just love...prayers of healing sent to your precious boy...xoxox


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